How We Began, and Why
Few people can even imagine need for hospice care for children, and most don’t even want to think about it.
When a two-year old boy in East Lansing, Michigan, was diagnosed in 2011 with an inoperable and incurable brain stem tumor, the need for hospice care became obvious to his family.
The child, Charlie Waller, had been diagnosed with diffuse intrinsic pontine glioma or DIPG, an inoperable brain stem cancer. After learning that Charlie might have only nine months to live, his parents became painfully aware at the same time that the local hospital, in common with many areas of the United States, had no nurses trained in pediatric hospice care.
Art for Charlie Foundation raises money through art events and art sales to promote the availability of hospice care for children, and to help families who suffer, or who have recently suffered the loss of a child.
We help children in hospice through grants to families and institutions. We also work through advocacy to advance the cause of pediatric palliative care across the state.
While our bereavement support followed naturally from hospice, the Foundation today helps families who have lost a child by any cause, whether from terminal illness or any other disease or accident.